Suffering Is Not A Contest

Since starting this little blog thing, there’s one phrase I keep hearing and reading that really gets me riled.

“I don’t think I’m sick enough to get help”.

Just… no.

I mean I get it. There’s this fear that even by contemplating going to a medical professional you’ll be labelled as potentially mentally ill.

But frankly, that’s dumb.

First up, you need to know.

You need to know what you have in order to manage it. And if you’re not actually mentally unwell, guess what? You’re not wasting anybody’s time. You, or your insurance, or you government, are paying a dedicated professional to assess you and give you an unbiased, objective opinion.

You’re not wasting their time or your money. They do this for a living. And you need to know.

Secondly, there’s no universal constant.

It’s not like there’s this grand unwritten measure that says “YOU MUST BE THIS ILL TO RESEARCH STUFF AND LOOK AFTER YOURSELF AND CONSIDER GETTING HELP.”

This isn’t a competition. Bipolarity is a medical condition. There’s no medals here.

Rule #1 – look after #1.

Comparing your experience to those of others like it’s a grade system is just unhelpful. The only comparisons that make sense are you today versus you yesterday.

If you’re suffering, do whatever you can to find out what you need to know. Don’t hurt others and don’t hurt yourself. Stick to that mantra and you’ll be golden.

The Bipolar Flavours

Manic – so energetic you might believe things that aren’t real. Happy/angry/paranoid states are frequent.
Hypomanic – you feel like you can take on more than you can normally. Again, not always in a positive way. Joyful/irritable/paranoid states can be common..
Mixed state – both up and down at the same time.
Rapid cycling – four or more episodes in a year.
Euthymic – hooray I feel normal!
Dysthymic – clinically low.
Mildly Depressed – oh definitely low.
Depressed – literally in hell.

Mixed episode??

Hi there, it is possible to have had a mixed episode despite not been diagnosed with any bipolar (or having mania/depression episodes before)??

Hi anon!

It is possible to experienced mixed episodes of bipolarity.

However, the diagnostic definition of bipolar disorder usually involves experiencing repeated and distinct highs and lows. Different professionals have different measures, but it is the distinct and repeating factor that matters.

Without these, it is difficult to say for certain just what you have experienced.

If you have several distinct high/low phases, or repeated episodes – mixed or not – you can raise this with your preferred healthcare professional.

They will help you work through your experiences to determine the cause.

I hope this helps, anon!

For the longest time I’ve feel that something was wrong with me. Ive always have a quick irritation moods that vanish suddenly, I’d wake up and feel great and suddenly something little would happen and my week would be fucked… I thought it was me. This past week was hell. Like literal hell. Crying and laughing, not wanting to leave the bed then feeling amazing… I don’t want to self diagnose, but I really think I might have some kind of bipolarism because I feel like a mess 1/2

2/2
I’m always screaming at people when I don’t want too, people think I’m
rude but I really can’t help it. I cry for no reasons, I’m tired all the
time, I’ve thought of killing myself… I’m tired of being like this,
soon I’ll go to a therapist and hopefully fix myself, because I can’t
keep on living like this. This week I’ve seriously considered jumping to
the train rails.
       
  

Hi anon,

It sounds like you’re doing it rough, and I congratulate you on taking positive action in response.

First, the caveats:

  • I’m no doctor and have no training
  • I do want what’s best for you
  • This is all just opinion backed by experience
  • I’m not a substitute for what you should do
  • Professional help always trumps what I say

It’s true that strong or heavy feels do characterise bipolarity. The feels we get can be overwhelming and compel us to act. And not acting on them feels like hell because what else are you meant to do with them?

It’s also true that some flavours of bipolarity (such as cyclothymia) do express themselves with fast, intense cycles.

These sensations can stem from a range of mental illnesses – not just bipolar. They can also come from chemical imbalances, thyroid conditions, medications and dietary issues.

If your condition is serious enough to give you suicidal ideation, then it is 100% time to start the process of diagnosis.

You’re right to be cautious of self-diagnosis, as that can lead you to take actions athat don’t bring you closer to an increase in the quality of life.

After all, that’s what we want here, right? To feel better?

So please,take this as a sign from a human who is concerned for your wellbeing – book an appointment with a healthcare professional, and start mapping out what is going on so you can start managing it. You’re the only one who can do this. and you deserve the chance to thrive. So make it happen!

And this goes for anyone else reading this response – you do not have to wait until you are “sick enough” to reach out.

The worst that happens is that you find out that you are going to be okay.

Medical Communication

Getting an accurate diagnosis is a huge part of managing any medical issue.

But so often, we’re so bound up in our pain that we aren’t able to communicate the full extent of our condition. This can result in a dismissive interaction where you feel your concerns are not being taken seriously.

This matters doubly for mental illnesses.

We can’t just get an X-ray or an eye exam. Our symptoms are personal. So our communication should be as well.

One way to help get the message across is to not just describe the symptoms, but how they impact our days.

For a physical ailment, the conversation might change from:

“My back hurts when I sit down”

to

“My back hurts when I sit down.
It is making my life

difficult. I can’t work at my desk, or drive to the shops, or play video games, or watch TV.”

The second option lets your doctor relate to your condition on a human level. They can empathise with your needs more clearly, which gives them the drive to go the distance on your behalf.

The same approach applies with mental issues.

Make
sure your doctor knows the full impact that your illness is having on
your life.

“I feel sad or empty for days at a time”

to


I feel sad or empty for days at a time. I’m worried it’s stopping me from getting my work done, enjoying my time off, and that it’s driving me away from family and friends.”

Don’t hold back for fear of being seen as weak.

You’re getting help. That takes guts.

Five Fun Facts


  1. There is a wide range of bipolar flavours
    including bipolar I, bipolar II, and cyclothymia.

    The diagnosis differs from country to country and even doctor by doctor.

  2. With bipolar disorder, you aren’t always “high” or “low”. You can have “mixed states” where you experience effects of both hypo/mania and depression.
  3. Hypomania isn’t always a “feel good” thing. Sometimes you can experience anxiety, paranoia, or angry.
  4. Depression isn’t always straight-up sadness. Sometimes it’s the absence of emotions, or a sense that they are far away.
  5. Bipolar disorder can elicit hallucinations in the form of sensations, hearing things, seeing things, and even smelling things that aren’t there.

Having a flavour of bipolar disorder is always a unique experience.

It doesn’t make you any more or less normal if you experience some things and not others.

And it doesn’t define you.

You are your reactions, not your experiences.

Hey, I’m 99% sure I have bipolar disorder. And I don’t know how to ask for help I am not close to any of my family members tbh and I just don’t feel comfortable talking to them about it. And they are so hurtful and rude to me I know they don’t understand what’s wrong with me but still. They say I’m acting “crazy” and I just feel so alone in this. So, my question is how do you deal with Being bipolar? and how did you ask for help? I’m underage as well so it’s ten times harder to ask for help:(

Hi Anon!

Yeah that’s a tough one alright!

Okay, so the usual caveats:

  • I’m no doctor/licensed professional
  • I don’t know you or your family situation
  • I don’t even know your country
  • Only suggestions I can give are from experience
  • Rule #1: look after number one

But first, I gotta say this to you.

You are not alone.

And to everyone else out there with a mental illness.

Diagnosed or not, you are not alone.

I know how it feels to be unsupported. You may be surrounded by people who don’t get it. Who don’t understand why you work the way you work. And being understood feels impossible. Because how can anyone know what you are experiencing without crawling inside your skull?

They can’t. No one can.

But we don’t have to.

You are not alone. Because, diagnosis or not, others have been where you are and come through it.

And we’re here to help.

Support groups exist for a reason.

And making use of them is a sign of strength.

We’re on your team.

You are strong enough to know when you need a hand, and you are strong enough to reach out for it.

Anon, you have already taken this first step by reaching out to me in this blog. That shows you have what it takes. If you can do this, you can go the distance.

Now, how do I deal with being bipolar?

I focus on my sense of ownership. I don’t control my feelings 100% of the time, sure. No one does.

But I am 100% responsible for how I react.

Depression is often considered the hard bit. And it has it’s dangers. But I have more difficulty with the high phases.

With depression, it is clear that I am “unwell”. And I’m usually lethargic AF. I stay in one place and feed myself and keep clean and just wait for it to be over. If anyone asks and I don’t fee like explaining it, I say I have a migraine. Zero damage.

But if I’m hypomanic I don’t feel “sick”. I feel great! I can do anything!! LET’S GO TO INDIA!!!

And it’s this feeling great that has me ignoring the red flags in my behaviour.

So instead of stopping the energetic behaviour, I redirect it before it goes too far.

Cleaning. Writing. New creative projects. I make cool plans that might be the best plans ever, but are also totally cool if they never happen. And I make it hard to spend money on impulse purchases by freezing my bank cards in blocks of ice.

These activities help divert my energy into harmless (and sometimes productive) channels until the episode subsides. And hey, if one of the side projects goes somewhere, great!

When I’m feeling off, I avoid sugar, alcohol, and caffeine, as these can impact on quality of sleep (which matters massively for mental health). I avoid all recreational drugs as well. I mean,
I don’t take them anyway, but I feel it’s worth saying.

Otherwise, I try to be as healthy as I can. I eat good food and lots of it. I work out three times a week.
I sleep for eight hours a night.

And I get out in the sunlight for ten minutes a day, whenever possible.

This stuff is boring and uncool and sometimes I hate my choice to be this healthy. But in reality it’s not that hard a choice. The truth is this – I can binge and be lazy and feel like shit, or I can suck it up, take ownership of my health, and have a great life.

I’m not perfect. I still act out and do unhelpful things. But these choices help me manage my reactions. And I’m glad I have the circumstances that let me make them

Now, how to ask for help?

That’s also tough.

I was diagnosed as an adult, which is a bit rare these days. But I know others who approached their families for help first.

Here’s their suggestions.

  1. Think about your ideal outcome. Is it a diagnosis? Getting support directly from family and friends? Really focus on the practical elements you want, and why you want them.
  2. Figure out which elements are the most likely to help you.
  3. Figure out which outcomes are most likely to work out the way you want them to in the long term.

If you’re in a position to request help from family, it may ease the process to perform a little creative framing.

You
say that they feel you are “ acting ‘crazy’”. It may help to own this.

You could say: “Yes, you are right. This behaviour feels out of character to me.
I am aware of it, and I understand your concern.

I would like to explore my options. Will you help me?”

Then if they are open to it, talk through your possible options. Make a point of including professional diagnosis, if that’s what you want. Or explain that you want to put mechanisms in place that limit any negative outcomes, while giving you space to regain control.

Whatever you are after, the aim is to take away their focus on you and your “behaviour” and how it makes them feel. And instead refocus their attention on solving a problem. All by giving them the opportunity to feel good by helping you.

Does this make sense?

Now I understand that not everyone is in a position where their family will respond the way they want. If you think they might? Then go for it. But if you think they won’t, rule number one comes into play.

Rule number one is “always look out for number one”.

Look after yourself first. Not in a selfish way. Not to the deliberate detriment of others. In this case, it may be a viable option to do your own research. Find strategies that work for you. Grow your understanding.

You may also choose to wait. If you feel that the support is not there, or you might make things worse for yourself, then this is a valid option. Look after yourself the best you can. And wait until you are in a position, or old enough, to get the help you need to improve your quality of life.

Regardless of what you choose, remember that you matter. And you are not alone

I hope this helps!

And if you need an outlet, suggestions, some real-talk on management strategy or whatever, you know where to find me.

Manageably Abnormal

Being diagnosed with a mental illness is terrifying because you are essentially told that your reality is abnormal.

But for me, diagnosis is less scary than not knowing why.

Because without the why, I would have no hope of effective management. And my reality would become unmanageably abnormal.

Instead, my reality is now manageably abnormal – and I’ll take that diagnosis any day.

19 Steps

  1. Endure a number of episodes unnoticed
  2. Act out and destroy things/people
  3. Retreat
  4. Avoid everything
  5. Get confronted by family and friends
  6. Get hospitalised
  7. Self assess
  8. Decide you need to see a GP
  9. See a GP, get referred to psychologist
  10. See a psychologist, get referred to psychiatrist
  11. Argue with the psychiatrist, because they’re shit at their job
  12. Get a better psychiatrist who gets you
  13. Do the sessions/take the meds
  14. Eat/sleep/exercise/meditate
  15. Manage your self better, and learn the signs
  16. Build a safety net of family and friends
  17. Get continually better
  18. When an episode is coming, let people know
  19. Repeat

+++++

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Meat Suit Mechanics

If something is wrong with my car, I take it to a mechanic. They have the tools and the knowledge to find out what’s happening, take steps to minimise the damage, get the car running and give me advice on how to avoid the issue in the future..

I once had a mechanic who was brilliant. He could get any car to start, which suited me just fine because I owned a bomb – a real accident-waiting-to-happen kind of car. Anytime there was an odd noise or a failure, this dude would get it started.

Eventually I graduated to a more modern mode of transportation. It had A/C. It had power steering and a radio that worked. It even had a little computer that checked how the engine was running, and made adjustments to things on the fly to keep it going. Sweet!

But the mechanic was lost. This was unknown territory. There were parts he couldn’t see that did things he could only guess at because of the results they produced. And when things went wrong with these invisible parts, he was at a loss. There was nothing for him to look at, no holes to plug, sumps to drain or gaps to weld. All he could do was shake his head.

This is why it’s damned important to have a doc you can trust. One who knows about the hidden computer that drives your meat-suit. One that looks at the results as holistically as possible and doesn’t make snap decisions, or try to plug the wholes with meds. Because when your meat-suit mechanic is dealing with bipolar, it’s not the meat-suit that has the issue – it’s the wet-ware behind it. And that needs a whole different suite of tools.